Hard-won Breath (a poem)

My husband lives with COPD (Chronic Obstructive Pulmonary Disease). I use “lives with” intentionally because COPD has no cure; the lungs don’t repair themselves. Eventually, they harden, limiting breathing until the heart can no longer withstand the stress. It’s a pernicious disease that kills, one way or another.

Not a happy ending to our love story, for sure. But then, all life ends the same way. It’s just about quality, how we live whatever life we’ve got, and timing.

Is there ever a good time to die? No. A bad time? Yes — like today, or tomorrow, before I’ve lived fully, before I feel truly done. Before all our “I Love You’s” are shared.

Listening to my husband struggle for breath, hearing the rattles and chugs of his lungs as he sleeps, talks, walks, does anything, is a constant reminder of death’s presence and Love’s eternal grace.

Love teaches me: I can’t avoid death. And so, I’m choosing to befriend it, or at least, to acknowledge its presence without fear and loathing colouring our interactions with dread,resistance and foreboding.

This poem is my way of grappling with its presence, and honouring my husband’s courageous fight for each breath.

Hard-won Breath
by Louise Gallagher

Hardened lungs
gasp,
struggle for air,
a painful search
for release
from disease
that chokes
each breath, hard-won
against a crown-of-thorns starfish
leaching life
from bleached coral dying
for life.

Ego vs Heart: the struggle is real

I catch my ego in its act of rebellious denial of reality. Wonder Woman defying Ares. Hands on hips. Feet firmly planted. Chest out. Chin up. Defiance personified. I breathe. In. Out. In. Out. Love rushes in.

And in that place, calmness embraces me. Nothing seems impossible. Love ripples through every act.

I hope you come and read the full post over on my Substack — Ego vs Love: The Struggle is Real.

Tug-A-War

Caregiving and the Illusion of Control

Dark green cedars stand silent, sentinels against the heaviness of the rain laden sky over Nanaimo harbor. Today, the water is a mirror, promising a smooth voyage to Vancouver. From there, we fly to Calgary, back to the muted tones of early spring still sleeping beneath winter’s blanket. 

I want to pull the blankets over my head and pretend the purpose of our visit is purely fun. The times insist I wake up. 

Reluctantly I accept the reality of this trip. My husband has a swathe of  medical appointments and I am essential to his ease and comfort while travelling. Wife, advocate, Sherpa, and now, caregiver; my role is to ensure any barriers to travel are removed from his path. It’s a role I navigate with a mix of love and reluctance. 

This is a journey far removed from the life we imagined when we said “I do.” Ten years ago. Back then, he was a force of vitality: golf, hockey, hiking, and the boundless joy of the Rockies.

Five years later, COPD, an incurable disease that is slowly stealing his breath, and reshaping our lives, changed everything.

I wrestle with those changes every day.  Like two opposing tug-a-war teams, I am constantly losing ground to the disease’s demands I give up control. I desperately try to dictate the terms of our uncomfortable co-existence yet know, this disease is the true master. In the starkness of its immutability, I am becoming a living contradiction and predestining myself to a tumultuous journey. 

Today’s calm waters offer a stark contrast to the turbulent emotional landscape of caregiving. I resist surrendering to vulnerability, dig my heels in like the proverbial horse being dragged to water when it comes to letting go of the illusion of control. How do you truly inhabit this role when the path is uncertain? How do you find strength when faced with unanswerable questions? 

The waters remain calm. Enigmatic. I stand and gaze out at the sea’s glassy surface. I cannot see into its depths yet still, I search for a deeper understanding, a way to find peace amidst the shifting tides. 

Perhaps, the true strength of a caregiver lies not in control, but in the quiet acceptance of what is and the certitude that all is as it is meant to be. 

The Breath of Now

When worry threatens to steal my joy, I find anchors in the present moment. Join me as I share a personal journey through the shifting tides of life and discover simple practices to cultivate calm amidst the storm.

To read the post, and discover 4 anchors to help you live in this beautiful ‘now’, CLICK HERE
#copd #copdawareness #caregiverlife #caregiverstress #dareboldly #livenow #dare

Breathing & Being: A Love Story

Years ago, I had a diving accident in Hawaii. I fought to breathe underwater only to be dragged quickly to the surface by a dive master who realized I was trying to breathe water like a fish.

Remembering the panic of those moments, the feeling of drowning, of not being able to get air helps me understand the feelings C.C. must feel now – except the COPD is a constant companion, not just an ‘accidental encounter.’

I’ve shared about the experience and more on my substack today. I do hope you come and join the conversation. To read the post, please click HERE.